Acerca de

Livingston County 

Goes Gray for J

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Jocelyn is Katelynn 's daughter. She is a 3 year old little girl currently battling AT/RT brain cancer, for the second time in her short life. She was just 17 months old at the time of diagnosis. She went through 5 rounds of high dose chemotherapy, 3 stem cell transplants, 2 brain surgeries, followed by 28 rounds of Proton Radiation. After this she was declared to be cancer free, resulting in the bell ringing. Sadly just 4 short months later she relapsed. Since her relapse in July 2020, she has been through 3 more brain surgeries, followed by 3 different chemotherapy protocols, which all resulted in failure. Up until a week ago, Jocelyn was enrolled in an Immunotherapy Clinical Trial at Dana Farber in Boston. Here is the update from Katelynn earlier this week:

I’m numb. I have no better way of explaining it.

I can’t feel. I’m in denial.

Life shouldn’t be this way.

Life shouldn’t be this hard.

I’m drowning.

Jocelyn’s scan came back with the worst possible scenario. The pieces of tumor that remained from her surgery 9 weeks ago have both doubled in size. There’s now a 3rd new tumor half the size of those located on her 3rd ventricle. There are multiple regrowing tumor nodules surrounding the entire surgical cavity. There are 4 new tumor nodules in various parts of her brain including on her brain stem. The cancer is taking over. It’s spreading in such a rapid way we never could have imagined. Until now she’s never had a spread beyond the site of her original tumor. She’s developed something called Leptomeningeal Metastases, which in short her CSF ( cerebrospinal fluid) is now flooded with cancer cells. These are coating different places of her brain not only causing the cancer to spread but also causing build up fluids. This is the root to all the nausea she’s been having.

We don’t know where to go from here. We’re currently working with multiple Neuro-Oncology teams around the country to see if there are any options for us. I want nothing more than to wrap her up and run away from all of this, run to a place where cancer doesn’t exist. I feel now more than ever, that we’re going to lose her, and I don’t know how I’ll survive that. Our fight is just about over.

Raffle Info:
 

>>Purchase as many raffle tickets as you'd like. After purchasing, you will receive a confirmation via email with the Facebook website where you can enter the raffles. The rest of the instructions and info will be on there! *100% of raffle ticket proceeds will be going to the Ducharme family.

>>If you purchase a shirt, they will start production in a few weeks so you will receive them 2-3 weeks after purchasing. A portion of each shirt will also be going to Jocelyn's family.

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